Breakout Session 3
Living with Disease: Inclusive and Ethical Approaches to Prevention

 

Join this interactive session to explore how we can make the shift from disease treatment to prevention, focusing on inclusivity. This session starts with talks from experts in the field of inclusive and ethical approaches to prevention.

This is what they will talk about: 

 

‘Just’ communicating with patients in oncological care: how communication differentially influences treatment options according to socioeconomic position by Bob Mulder

A recent report of the Netherlands Comprehensive Cancer Organisation showed that cancer patients with lower socioeconomic positions (SEP) less often receive life-prolonging treatment as compared to high SEP patients. Communication between healthcare providers and patients affect the process of treatment choice in several ways, for example, through shared-decision making. Pathways through which patient-provider communication influences treatment decisions are discussed, including causes and potential solutions.  

 

Involving the target group in the DENSE-2 trial: collaboration and engagement by Sophie van Grinsven

The DENSE-2 trial is a randomized controlled trial within the Dutch breast cancer screening program, designed to study supplemental abbreviated MRI (AB-MRI) screening and contrast-enhanced mammography (CEM) screening for women with extremely dense breasts. The trial is set to begin in the fall of 2024. One of the four work packages focuses on engaging the target group in the study, including, for example, the establishment of a client and patient advisory group and the co-creation of information materials with various stakeholders. We hope this approach will result in high participation and ensures inclusivity in this study. 

 

Social inequity in cancer prevention, diagnosis and care: a focus on LGBTIQ+ people by John de Wit

Social inequities in health are pervasive and, as noted by the European Cancer Organization, also affect cancer prevention, diagnosis, and care of LGBTIQ+ people. LGBTIQ+ people are found to be more likely to engage in cancer risk behaviors, less likely to be screened for cancer, more likely to be diagnosed with (some) cancers, and experience barriers to care resulting in unmet care needs. Health care providers indicate a lack of knowledge and confidence in providing appropriate cancer services to LGBTIQ+ people. Evaluations of provider competency training show promising results, and health care funders and professional organizations are developing guidelines to ensure LGBTIQ+ inclusive cancer prevention, diagnosis, and care.

Socioeconomic inequalities in cancer in the Netherlands by Mieke Aarts

Low income is associated with shorter life expectancy and poorer health. We investigated socioeconomic inequalities in cancer in the Netherlands, based on the Netherlands Cancer Registry. We found that those with a lower income are more likely to be diagnosed with many, but not all, cancer types; and that in five common cancer types, patients with low income are less likely to receive cancer-directed treatment. In cases where treatment was initiated, it was less invasive therapy. In the presentation, the results for outcomes (survival, quality of life, work and financial problems, aftercare) will be shown.